Imagine a tiny warrior, barely old enough to understand the battles she's fighting, facing her second life-altering transplant. This is the reality for three-year-old Etta Cartmill, a little girl from Newry, whose life has been a testament to resilience. Etta, along with her older brother Olly, was born with a rare genetic condition, TTC21B, so uncommon that it lacks a common name, leading to kidney failure. But here's where it gets controversial: This family has already navigated incredible challenges, and their story is a powerful reminder of the strength of the human spirit.
Etta's journey has been marked by hospital stays and a constant fight for survival. She's already undergone a life-changing liver transplant, a testament to her and her family's determination. Her brother, Olly, received a kidney transplant in September 2023 at just 13kg (29lbs), thanks to a live donation from his grandmother, Michelle.
Now, Etta is preparing for another major surgery: a kidney transplant. Her mother, Dionne, has stepped up to the plate, discovering she's a match and ready to donate one of her kidneys. The family's commitment is unwavering, taking Etta from Bessbrook, County Armagh, to Belfast up to five times a week for dialysis, alongside trips to Birmingham for specialist care.
The news of Etta's liver transplant came as a surprise to the family. Dionne shared that while they knew about the kidney condition, the liver issue emerged only a year ago. The 11-hour surgery last September was a success, though it required ventilation and a mesh to close her abdomen due to swelling. But the results have been remarkable. Etta is now thriving, her personality shining through, a stark contrast to the misery and pain she endured before.
And this is the part most people miss: Dionne's decision to donate a kidney to her daughter is a testament to the extraordinary bond between a mother and child. She expressed her joy and readiness, echoing the sentiment of Michelle, who donated a kidney to Olly. Olly's life has also been transformed since his transplant, blossoming into a vibrant, energetic child.
What do you think about the Cartmill family's journey? Do you have any experiences with rare medical conditions or organ donation that you'd like to share? Let's discuss in the comments below!
